Baby Shea came into the world, early, in dramatic style. She needed resuscitation immediately after birth, and on her second day of life, Shea’s heart went into a type of arrhythmia called Torsades de Pointes. Doctors estimated that Shea’s QT interval was over 700 (normal is <440ms).

In February 2018, Heather, the Curriculum Director of her local school district, was joking and chatting with colleagues in the conference room. All of a sudden, she felt the room begin to spin, felt nauseous, and attempted to leave for the restroom. She managed only two steps towards the door before her heart stopped, and she dropped lifeless to the floor.

Baby Azariah, whose name means ‘God is my help’, was born prematurely and spent 33 days in NICU (Neonatal intensive care unit). He was initially rushed to NICU due to an abnormal heart rate. Fortunately, the hospital had the state’s best paediatric electrophysiologist and diagnosed Azariah with a severely prolonged QT interval. He immediately started beta blockers, one current therapy for Long QT syndrome. Angela attributes this vital early intervention at only two days old to saving Azariah’s life.

Lizzy's journey with Long QT Syndrome began at birth when a nurse noticed her low heartbeat, leading to comprehensive monitoring and the identification of her arrhythmia. She was immediately transported to the Children's Hospital of Philadelphia, where she was diagnosed with Long QT Syndrome Type 3.