Alexis Holmgren, a 20-yr old from Alberta Canada, was diagnosed with LQTS Type 5 when she was 12. Growing up she experienced multiple fainting spells after basketball practice and three near-drowning events between the ages of 10 and 11, but as she reveals, LQTS doesn’t define her.

Daiana is a 22 year-old with LQTS Type 2. During her early childhood she had spells of dizziness, fatigue, nausea and chest pains, she was never diagnosed. All that changed in 2013. 

Darcy Carhill’s heart stopped when she was 36 weeks pregnant with her daughter Aria. Darcy was later diagnosed with Long QT Syndrome Type 5

In 2008, just two days before her 16th birthday, Emily was diagnosed with LQTS, and as a young athlete the diagnosis marked a difficult personal transition.

When Marjaan was finally diagnosed with Long QT Syndrome Type 5 in 2019, she was very relieved. For all these years, she knew something wasn’t right. Finally, it was a relief to have an answer, and in reading about Long QT Syndrome, she found it described all her symptoms.

Sarah Michaelis-Heidman is a 25-year old from Barrie, Ontario, who was diagnosed with Long QT Syndrome in 2019. A three-time cardiac arrest survivor, Sarah has an implantable cardioverter-defibrillator (ICD) to correct her life-threatening cardiac arrhythmias.

Dave Hutton is a school teacher by profession, and a Long QT Syndrome caregiver by devotion. Upon his daughter Isla’s diagnosis with Long QT Syndrome Type 3 in 2016, Dave left teaching to be the full-time caregiver to his little girl.