Emily Boone
In 2008, just two days before her 16th birthday, Emily was diagnosed with LQTS, and as a young athlete the diagnosis marked a difficult personal transition.
Marjaan Barbano, LQTS Type 5
When Marjaan was finally diagnosed with Long QT Syndrome Type 5 in 2019, she was very relieved. For all these years, she knew something wasn’t right. Finally, it was a relief to have an answer, and in reading about Long QT Syndrome, she found it described all her symptoms.
Sarah Michaelis-Heidman
Sarah Michaelis-Heidman is a 25-year old from Barrie, Ontario, who was diagnosed with Long QT Syndrome in 2019. A three-time cardiac arrest survivor, Sarah has an implantable cardioverter-defibrillator (ICD) to correct her life-threatening cardiac arrhythmias.
Dave Hutton and his Long Cutie, Isla
Dave Hutton is a school teacher by profession, and a Long QT Syndrome caregiver by devotion. Upon his daughter Isla’s diagnosis with Long QT Syndrome Type 3 in 2016, Dave left teaching to be the full-time caregiver to his little girl.
Alexander Thomas & Family
Alexander Thomas is a 17 year-old dance prodigy born in South Florida. Alexander also has Long QT Syndrome, a condition shared by his mother, Palmire, and his brother, Adrien. This is their journey, shared with the LQTS community.